Brief (for me
) backstory: I was in the hospital Jul 2-3 this year for what was initially thought to be CHF, congestive heart failure. I have not been able to breathe, I wake up at night gasping and feeling like I'm suffocating. I had sleep apnea surgery in 2004. I've been swollen... hands, feet, face (bushy beard notwithstanding, you can still see the puffiness), tired all the time, no strength, most of the symptoms of CHF.
I get an ECG, EKG, stress test. Mr. Heart is in perfect shape. I even ran for 2-3 mins. on the treadmill. Heart rate and breathing came back to normal within 2-3 mins. Cardiologists' eyebrows went up, jaws dropped. Not bad for a fat guy who's supposed to have CHF. OK, so we find my thyroid is out of control again (hypo, time to adjust medicine).
Fast forward to yesterday (or is that rewind?
)...
Follow up with my internist of 20 years, who yells at me because I gained weight. Yeah well, if you can't breathe it's kind of hard to do much exercise.
So I yelled back at him.
He takes blood for just about every test except pregnancy. I go back yesterday for that follow up. My hematocrit and hemoglobin are entirely too high. I hear him say to his interns "he has polycythemia". He gets onto a FaceTime session with another doctor who is a hematologist and oncologist. Why the eff are you talking to an oncologist?
He says to the other doctor "I'm sending him over right now". OK, so I go and see this doctor. He looks at my blood work, asks me a ****-ton of questions, examines me, pokes around my belly. He hits a tender spot and says "ah ha". He says it feels like my liver or spleen may be swollen or there's some other mass he can't define. So I'm going for a CAT scan.
He says that everything is consistent with polycythemia vera.
What the @!$%*&# is polycythemia, dammit!?
Polycythemia vera - Symptoms and causes
So, I have these symptoms:
- Itchiness, especially following a warm bath or shower
- Headache
- Dizziness
- Weakness
- Fatigue
- Blurred vision
- Excessive sweating
- Painful swelling of one joint, often the big toe
- Shortness of breath
- Numbness, tingling, burning or weakness in your hands, feet, arms or legs
So yeah... I'm a member of
Club C,
"C" Is For Cancer;
The Big C,
The C-Word. My husband is sitting there listening to all this like
- Is it fatal? Only if left untreated. Death by stroke, heart attack, pulmonary embolism.
- How long do I have? Treated, my normal lifespan.
- Can it be cured? No.
- Can it be treated? Definitely.
- What do they do to treat it? Blood thinners (and/or low-dose aspirin), blood-letting, medication to tell the bone marrow to stop over-producing red blood cells.
- What causes it? Genetics, particularly a mutation on the JAK2 and/or TET2 genes (must investigate this further, for knowledge's sake).
So now I know why I've been feeling like ****-on-a-Ritz.
Cancers do run on my maternal side, killing all of them:
- Grandmother, colon cancer.
- Mother, ovarian cancer.
- Aunt #1, leukemia
- Aunt #2, liver cancer.
My paternal side: they were all too nasty and evil to catch anything. People asked me what my father died of. I'd say he got tired of my mother's **** for 53 years, so to get away from her he died.
Seriously, so I put on my battle armor, sharpen my sword, and look forward to getting my strength back.