Not knowing anything about it, I just googled Huntington's ....... they are talking about the possibility of a cure.... I think that was on a Canadian web site. I feel sure that you would know better than myself.
Day by day, yes? I live in the moment now, and I savor every minute of it.
Its a disease you would not wish on your worst enemy...something like Alzheimer's, Multiple Sclerosis and Parkinson's all at once.
Day by day, yes...minute by minute later. Cures are a bit thin on the ground where big pharma is involved. Too much money to be made in "treatments". Cures mean that you lose customers. I have been hearing about "cures around the corner" for decades......none of them ever seem to materialize. I will believe it when I see it....such is my trust in anything connected to the commercial world. Medicine is big business. Greed knows no bounds as we see the demise of our humanity.
Yes..... I understand that absolutely.
I expect that your Faith does help ... but loss of loved ones must be quite as painful for believers as for agnostics.
I am comforted by the belief that we will see all those whom we have lost again when God brings this old world to its inevitable end and reintroduces his rulership. He promises that the dead will rise again. I believe him.
None of this was supposed to happen so we have no 'program' for death. No matter how much time elapses, we just never get any better at dealing with it. Grieving is such a personal thing....I still find myself staring at the empty space in my bed and longing for him to still be there. I miss making his favorite foods. I miss him fixing things that get broken. I miss him coming home excited that he shared waves with the dolphins that day....so much, when you share a lifetime with just one person. We were just shy of our 45th Wedding Anniversary.
This disease kept a low profile in my husband's family for generations, so it was not diagnosed until he began to present with symptoms in his fifties. We later figured out that his mother had it and his grandmother. We had our kids and grandkids by then. The monster is still stalking them.
So yes, one day at a time is all we can manage.
And friends and neighbours can tend to distance themselves which is what I found out when my first wife was so ill..... she died in 1991 in a final seizure after years of torment from them.
Yes, some people can't handle it....its too confronting.
And how galling to find out that they had the treatment for seizures all along and didn't tell anyone. Nothing is more successful for treating a whole range of ailments, especially epilepsy, than Medicinal Cannabis. It was buried by them for 7 decades whilst they peddled their expensive poison. Only now have they been exposed, and MC is beginning to be appreciated as the God-given medicine it was meant to be.
Day by Day........... you deserve as much happiness as everyone else, and I expect that your late husband wished it for you with all his heart and soul. May you find some, Deeje, and may science move forward fast for you and yours.
Thank you for your kind thoughts OB....they are much appreciated. But I guess there are a lot of souls here to whom life had dealt bitter blows. We can gain strength from them, or let them bury us. I chose to keep living....as I imagine you did too.
Blessings to you my friend.
