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#1
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Has anyone on the forum felt like I have, that I wish I could have a 'painometer' ? People often complain of pain; as soon as I start talking about my own pain to the doctor, he tells me on a scale of 1(low) to 10 (high) he reckons that I am round about the eight mark the whole time. I find this hard to believe, although I must admit that I have learned to 'live with' pain.
I have studied various forms pain management and distress tollerance, but I would really like to be able to compare like for like. Actually, thinking about ity 'Fibromyalgia' is itself a condition caused by the pain receptors being 'bombarded too much for too long' - hence the permanent being tired. ![]()
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My life is an open book; if you don't like the read, put me back on the shelf ....................
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#2
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I have had it since I was 12 and have had countless surgeries most of wich didnt do a thing for me. The last surgery I had was about 3 yrs ago it helped for a while but now I am again having major aches.. There is nothing out there that helps ease it either. My problems range from a little ache to complete agony. sore muscles ect, painful to walk.. ect More fluid on my left knee then on my right now.... wich was my good one. I have been told by 5 doctors that when I am older I am a candidate for knee replacement. ( o great )Michal I so know where you are comming from on this . My pain between 1-10? try a 15 ![]()
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"We all have ability. The difference is how we use it."-- Stevie Wonder
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#3
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#4
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I have a huge IGNORE button when it comes to pain. I ignore the pain even when I should be paying attention to it.
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Matthew 7:12, "Do unto others as you would have them do unto you" |
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#5
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That would be nice, but I probably would've broken it. When I was in labor with my daughter, I thought I had reinvented the meaning of pain. You will never be conscience of exactly how much pain the human body is capable of feeling without dying unless and until your a woman in labor. But when the nurse asked me to rate it I always said 7, because I didn't want to seem like a wimp. Still, it was all worth it.
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Proud mommy to Grace Meriah (3) and Rachel Victoria (1) and "with child" again! |
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#6
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My pain scale has a "ten" but it was fleeting. It happens (3 times)when I am externally cardioverted for ventricular fibulation and remain conscious during it. But I rather have that then the constant pain of FMS. I am so sorry Michel and you will have a stronger place in my thoughts from this day forth.
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It may be that our role on this planet is not to worship God - but to create him.
Arthur C. Clarke We have created some but they sure weren't an intelligent design. |
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#7
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Michel, one of my best friends has fibromyalgia, so I kinda know what you're going through, and I think the worst part of it, at least for her, is that no one seems to understand.
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Proud mommy to Grace Meriah (3) and Rachel Victoria (1) and "with child" again! |
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#8
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Michel and Ness I am really sorry. I once dated a woman in her late 20's with a bone diese that had fiberbromyalgia. I wanted to get her into tai chi but she wasn't receptive to the idea. Being as you two are a little more experienced maybe yall could start a thread on exrecises and wellness things you have tried and how they worked for you.
I taught my ex how to meditate and sometimes it seemed like she "dissappeared" in her own world for spots in time but it was always so temporarly It was so frustertating. She studied tae kwon do (korean martial art) and we would stretch together alot to get the stiffness out of her muscles. Isometric floor stretches as opposed to those using motion to stretch the muscles. That and I would read to her while she was taking a hot bath or rub her shoulders....warm water seemed to work really well. But somebody cruising these forums is bound to have pain problems but is much younger and could benefit from yall's wisdom. Maybe a thread on general home wellness ideas....swapping and sharing ideas would be a good thing. Am I currect in my observation that woman seem to get fiberbromyalgia much more often than men? |
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#9
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Yes - I don't know why ,ore women suffer from Fribromyalgia, but, as you say, that is the norm. As with Osteoporosis, which is common in post menopausal women, yet for some reason, I have that too - even my jawbones are full of 'pockets'; I'm trying to work out what the best thing to do is. With receding gums, the food can go down below the tooth and give me abscesses - then I have to have the tooth out (Even if there is nothing wrong with it). Ness, If you are reading this, I am so sorry to hear about your problems; I had a new hip put in in 2001 and Marie and I were remarking that the scar seems to have almost completely gone (They had to open me up 1'6"- to try and shorten the leg,peg it with titanium, and a titaniun socket and plastic ball joint). All in all, I think I'd be worth quite a bit for scrap value!!! At the time I was in hospital, rthere was a guy having the first of his two 'knee' jobs; we had great fun - we took to each other. One week end, when we were the only two in the ward, we got the staff nurse's OK to have an 'Indian take-away' brought into the hospital (We could'nt have any alcohol because we were both on morphine at the time); it was so funny - we went into the visitor's lounge next to our ward, and invited all the nurses on night shift to join us . It was the first time they'd had to deal with idiots like us. It seems like you're worse off than I though, and I am sorry to hear it - perhaps we can 'swap' pain management techniques.
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My life is an open book; if you don't like the read, put me back on the shelf ....................
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#10
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It seems to me as though people with Fibromyalgia have it a little bit harder than me though.. I will explain that in "our" thread ![]()
__________________
"We all have ability. The difference is how we use it."-- Stevie Wonder
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